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Chasing the Intact Mind

How the Severely Autistic and Intellectually Disabled Were Excluded from the Debates That Affect Them Most

«This is a fascinating book: It is forthright, it is honest, it is comprehensive, it is evidence-based. Importantly, this work tees up essential discussion of 'inclusion,' and how often it too relies on false hope, and distracts from our urgent need as a society to face the demands of guardianships and life-time supports we should be building for our autism community.»

Bryna Siegel, PhD, Founder & Executive Director, Autism Center of Northern California; Professor, Ch
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Detaljer

Forlag
Oxford University Press Inc
Innbinding
Innbundet
Språk
Engelsk
ISBN
9780197683842
Utgivelsesår
2024
Format
16 x 24 cm

Anmeldelser

«This is a fascinating book: It is forthright, it is honest, it is comprehensive, it is evidence-based. Importantly, this work tees up essential discussion of 'inclusion,' and how often it too relies on false hope, and distracts from our urgent need as a society to face the demands of guardianships and life-time supports we should be building for our autism community.»

Bryna Siegel, PhD, Founder & Executive Director, Autism Center of Northern California; Professor, Ch

«Reading this brave, well-researched book I felt myself making a mental list of all the people to whom I'd recommend it. Lutz shows us the perilous seduction of the 'intact mind,' moving us through historic landmarks to the contested landscape in which we find ourselves today. With clarity of style and argument she shows how rhetoric transforms into policy, harming the very people those policies are meant to help. Her approach is one of deep empathy and understanding for those with severe autism, and their caregivers.»

Deborah R. Barnbaum, PhD, author of The Ethics of Autism: Among Them but Not of Them and Professor o

«Amy Lutz bravely tackles the myth of the intact mind that has become so prevalent in modern autism dialogue. Lutz acknowledges that the intact mind mantra provides families critical 'high octane hope,' but also poignantly emphasizes the real-life consequences of blind adherence to dogma in terms of vastly reduced critical life opportunities for some of the most vulnerable individuals along the autism spectrum. A must-read for anyone truly committed to seeing all the faces of autism and optimizing care and long-term outcomes for everyone.»

Lee Elizabeth Wachtel, MD, Professor of Psychiatry, Johns Hopkins School of Medicine

«The book has extensive academic references. Recommended. Advanced undergraduates through faculty; professionals.»

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